Rare Disease Day 2016

2/29/2016

WHEREAS, in the United States, a disease is considered rare if it afflicts fewer than 200,000 Americans; and

WHEREAS, there are nearly 7,000 diseases and conditions considered rare in the United States, cumulatively affecting more than 30 million Americans; and

WHEREAS, individuals and families suffering from rare diseases often experience diagnosis delay, difficulty finding a medical expert, and a lack of access to treatments or ancillary services; and

WHEREAS, these diseases can be debilitating and make patients and their families feel isolated by their uncommon experience; and  

WHEREAS, the National Organization for Rare Disorders (NORD) is having its 8th annual nationwide observance of Rare Disease Day on the last day in February to recognize the courage of those fighting rare diseases, including patients, medical professionals, and scientific researchers; and

WHEREAS, on February 29, 2016, the Commonwealth of Virginia will observe this day and consider this year’s focus: Patient Voice;

NOW, THEREFORE, I, Terence R. McAuliffe, do hereby recognize February 29, 2016, as RARE DISEASE DAY in our COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all our citizens.

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