Heterotaxy Syndrome Awareness Day 2016


WHEREAS, heterotaxy syndrome is a congenital condition that affects the development, placement, and presence of internal organs including the heart, liver, lung, intestines, and spleen; and

WHEREAS, heterotaxy syndrome affects many body systems and requires a team of many specialists for treatment; and

WHEREAS, mortality of those with heterotaxy is high, but, due to lack of tracking and research, the exact numbers are unclear; and

WHEREAS, the exact cause of heterotaxy is not known; and

WHEREAS, those with heterotaxy syndrome that survive to adulthood find their condition largely unknown to the community; and

WHEREAS, funding for research and holistic treatment for heterotaxy syndrome are low; and

WHEREAS, Heterotaxy Syndrome Awareness Day provides an opportunity for families that have been affected to celebrate life and to remember loved ones lost, to honor dedicated health professionals, and to meet others and know they are not alone; and

WHEREAS, the establishment of Heterotaxy Syndrome Awareness Day will also provide the opportunity to share experience and information with the public and the media in order to raise awareness about heterotaxy syndrome;

NOW, THEREFORE, I, Terence R. McAuliffe, do hereby recognize May 4, 2016, as HETEROTAXY SYNDROME AWARENESS DAY in our COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all our citizens.