Ehlers-Danlos Syndrome Awareness Month

5/1/2014

WHEREAS, Ehlers-Danlos Syndrome is a group of genetic disorders involving mutations in connective tissue characterized by looseness, instability, and dislocations of the joints, fragile and often hyperelastic skin that bruises, scars, and tears easily, unpredictable arterial and organ rupture causing acute pain, excessive internal bleeding, shock, stroke, and premature death; and 

WHEREAS, there are six major types of Ehlers-Danlos Syndrome, affecting approximately 1 in 5,000 people worldwide; and 

WHEREAS, by encouraging further studies of Ehlers-Danlos Syndrome, new understanding, interventions, and improved treatments can be developed; and 

WHEREAS, early and accurate diagnosis can provide the opportunity to create life-saving emergency medical plans, ensure proper monitoring, and improve quality of life and support for Ehlers-Danlos Syndrome families in Virginia; and 

WHEREAS, improved knowledge of the vascular form can prevent premature and tragic deaths, and increased knowledge of all types will allow for earlier and more effective management of Ehlers-Danlos Syndrome, which is often misdiagnosed or undiagnosed; and 

WHEREAS, in honor of all our families and friends who have fought with Ehlers-Danlos Syndrome, and the network of Ehlers-Danlos Syndrome organizations that continues to educate and raise money for research and care; 

NOW, THEREFORE, I, Terence R. McAuliffe, do hereby recognize May 2014 as EHLERS-DANLOS SYNDROME AWARENESS MONTH in our COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all our citizens.

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