Ehlers-Danlos Awareness Month 2016


WHEREAS, Ehlers-Danlos syndrome (EDS) is a group of hereditary disorders that affect the connective tissues supporting skin, bones, blood vessels, and many other parts of the body; and

WHEREAS, classified as a rare disease, there are six major types of EDS, each defined as a distinct disorder; and

WHEREAS, due to defects in the major structural protein collagen, individuals with EDS have abnormally flexible and loose joints, thin and elastic skin, and are susceptible to injury; and

WHEREAS, although it is difficult to gauge the overall frequency of EDS, the U.S. National Library of Medicine indicates that 1 in 5,000 individuals worldwide have EDS; and

WHEREAS, life expectancy can be affected by certain types of EDS; and,

WHEREAS, while there is no cure for EDS, preventative measures can be taken and treatments for symptoms exist; and 

WHEREAS, Ehlers-Danlos Syndrome Awareness Month is an opportunity to ensure greater understanding of EDS, in both the general public and within the medical community;

NOW, THEREFORE, I, Terence R. McAuliffe, do hereby recognize May 2016 as EHLERS-DANLOS SYNDROMES AWARENESS MONTH in our COMMONWEALTH OF VIRGINIA, and I call this observance to the attention of all our citizens.